Wednesday, March 30, 2011
Check out this big boy!
Posted by The Groves Family at 4:05 PM 1 comments
Thursday, March 24, 2011
Cade got his DOC band today!
Today we went to Cranial Technologies to pick up Cade's DOC band! We met with an Occupational Therapist today who gave us all the "rules" for wearing the band and then Cade got to put it on for a test run.
Cade got to wear the band for about 30 minutes and then examined his head and made adjustments to the places where the band was rubbing. There were just a couple of places that they smooth out and then we were out the door.
The first couple of days we get to take the band off every couple of hours to examine Cade's head and make sure there aren't any red places. After that we will only take it off while we are doing his neck stretches and during bath time. There are very specific instructions for everything about the band to ensure that the treatment is effective.
My first priority for the band was to get it decorated so that it isn't such an eye sore! We are planning to have the band wrapped by 360 Wraps in mid April so until then we can add stickers to it for some extra personality! We bought some stickers last week and I went and bought more today. (I had a hard time finding boy stickers that aren't 3D so if you have any insight please share!) I ended up with dump truck and bull dozer stickers, jungle stickers, planes/ trains/ and truck stickers, robot stickers, and of course some fireman stickers so we'll be able to change things out along the way!
As soon as I got home I took Cade's band off and started with the stickers! First up are the robot stickers and I am really excited about how cute it looks now!
Our biggest challenge over the next few days is going to be getting Cade's body acclimated to having the band on his head and re-regulating his body temperature. Every time I take the band off his little head is just dripping with sweat! I found the coolest outfit to put him in this afternoon and have had the air conditioner and fan on all afternoon trying to keep this boy cool! I am just hoping now that he can sleep good tonight!!!
Posted by The Groves Family at 7:06 PM 3 comments
Friday, March 18, 2011
Busy Week!
We have had a a few extra things going on this Spring Break week which have kept us busy! My friend Ginny moved to Taiwan last July and came back to visit for the first time this week. I love reading Ginny's blog and keeping up with all her and her husbands fun travels and adventures but sure have missed my daily lunches and conversations with her. Cade and I went to meet Ginny for lunch on Wednesday at Cafe Express. It was so wonderful to see her again and it felt like nothing had changed even though my entire life has changed since she left! We had a great lunch together catching up on everything. I am hopeful that James and Ginny will return to Dallas in the fall and that Ginny and I can work together again!
I took my camera with me but of course forgot to take any pictures of Ginny and Cade so instead here is a picture of Ginny and I from several years ago at a Rangers Game. (Sure do wish I still looked like that!!!)
Our neice Bailey has also been in McKinney this week with her grandmother and cousins. We made arrangements to go pick her up for dinner on Wednesday night. We haven't seen B since Christmas so she was so excited to get to see Cade again and couldn't belive that he had grown so much! We had dinner at Genghis Grill and then went to Braum's for dessert (both choices of Bailey's)! We had a great time with Bailey and love any time that we get to have her with us!
Yesterday was St. Patrick's Day and so our house was full of green! I love holidays and getting to dress cade up!
Posted by The Groves Family at 10:26 AM 1 comments
Wednesday, March 9, 2011
Cranial Technologies Consultation
We took Cade for his consultation at Cranial Technologies on Friday. The appointment started off with a photographer taking pictures and measurements of Cade's head. After that we met with a Physical Therapist that went over the results with us. The pictures showed that because of the flat spot on the left side of Cade's head, he has increased head height on the right side, a head tilt to the left and a sloped forehead. When they did the measurements he has a 5 cm difference in his ear to eye positioning and a 12 cm difference in the diagonal length of his head so there definitely is some facial asymmetry. A DOC band was recommended for Cade and the Physical Therapist said that we have an excellent chance for correction. Along with the recommendation for the band the PT also said that Cade favors turning his head to the right still and recommended that we continue the left neck stretches as well as some new stretches to increase his neck strength.
The results from our appointment were sent to our Pediatrician and the insurance person for Cranial Technologies will contact our Pedi for a letter of recommendation and then contact our insurance company about the treatment early next week. After she has all of the information from our insurance company she will call us to schedule our next appointment. Unfortunately, a lot of insurance companies won't pay for this therapy because they believe it is a cosmetic fix and not a medical fix. While there are some cosmetic components to the fix it is also a medical condition that can cause jaw problems, vision problems and migraines, as well as developmental delays. It can also cause a child to not be able to fit into a bicycle, baseball, or football helmet. (The cost of treatment is $3,800 so we are really hoping that our insurance will pay for at least part of it!) Hopefully we will hear something on Monday or Tuesday and can schedule our next appointment for the end of the week.
During the next appointment they will obtain a 3D image of Cade's head using a machine they have called the DSi (Digital Surface Imaging). This machine has 15 high resolution digital cameras that are strategically placed to capture a complete 360 degree image of the infant's head shape. This information will then be sent to Arizona where they manufacture the bands and a band will be created for Cade and sent to us in a week.
Once we receive the band, Cade will be required to wear it 23 hours each day. We will take the band off with each diaper change to clean Cade's head and the helmet and perform his neck stretches and then put it back on. The only other time it will come off is during bath time. We will take Cade back to Cranial Technologies once a week throughout the treatment for them to evaluate the band and make adjustments. Hopefully Cade will just need to wear the band for 6-8 weeks in order to achieve the desired results.
We are anxious to hear what our insurance company says and to get the treatment started in hopes that we can have everything done and Cade out of the band before it gets brutally hot out this summer!
Posted by The Groves Family at 10:14 AM 0 comments
4 month doctors appointment and a new journey
We took Cade in for his 4 month well baby appointment and shots on Monday. He is a growing boy and progressing developmentally right on track.
He weighs 13 pounds 10 ounces (25%)
He is 25 inches long (50%)
His head is 17 inches around (75%!!!)
Cade got 3 shots again this time along with an oral vaccine. The shots are definitely the worst part of the appointment and it was so hard for me to leave Cade after the appointment to go into work. I am so thankful for our situation and that Gregg was home all day to love on and cuddle with our sad boy!
Cade has had torticolis since he was born. This basically means that he was cramped in the womb and when he was born his muscles were tight and he didn't have good head and neck motion. Gregg and I both noticed this and that he had a flat spot on the back of his head very early on (which we also think started developing in utero). We worked hard to reposition him constantly and encourage him to turn his head in all directions in order to prevent additional problems. We took him to see our pediatrician about the problem when he was about 6 weeks old and started doing neck stretches with him multiple times a day. His neck stiffness has dramatically improved and we don't have any problems with that any more. He does still have the flat spot on the back of his head which our pediatrician has been monitoring very closely. Along with the flat spot he has some facial asymmetry- one of his cheeks is bigger than the other and one of his ears is higher than the other and set more forward than the other- all problems associated with and caused by the flat spot. The physical therapy and neck stretches that we have done have helped to make sure that the problems haven't gotten any worse but they haven't improved either. Our doctor told us Monday that Cade has a mild case of plagiocephaly and recommended that we take him for a consultation at Cranial Technologies in order to be fitted for a DOC (Dynamic Orthodic Cranioplasty) band (helmet.) The DOC band works by applying mild holding pressure on the babies head. It directs growth to the flat regions and discourages it from the prominent areas. Our pediatrician has said that she doesn't think the defect is so severe that we have to treat so that decision is up to Gregg and I. We have done a lot of praying, reading and research over the last few days and we have decided that we want to move forward with the treatment and that Cade will be getting a DOC band. We have our first appointment this Friday morning and should know more then. We ask for lots of prayers for all 3 of us as we begin this journey and will keep everyone posted on what we learn Friday.
Posted by The Groves Family at 10:13 AM 2 comments
4 Months Old
Posted by The Groves Family at 10:12 AM 0 comments
Thursday, March 3, 2011
New Pictures
We took Cade to a place in Allen last weekend to have a few pictures made. We haven't had real pictures done since our newborns in November so we thought this would be fun. We plan on going back to Lynette to have his 6 month and 1 year pictures done and then use this place for in between pictures! I love the new pictures of Cade but most of all am loving the new family picture!



Posted by The Groves Family at 5:42 PM 3 comments


